To the Editor:
June is MG Awareness month. As MG ambassador and Southern Illinois walk coordinator, my goal is raising awareness while lighting the Midwest in the awareness color teal.
There are the inevitable changes that come into our lives. Is there anyone that planned to be diagnosed with Myasthenia Gravis or any other serious chronic illness, and definitely not one that has no cure?
Life can change drastically with Myasthenia Gravis, a rare chronic autoimmune neuromuscular disorder characterized by fluctuating weakness of the voluntary muscles. MG can impact a person’s ability to see, walk, talk, breathe and smile. It is estimated that about 100,000 people in the U.S. have MG. It can affect people of all ages, genders and race, and there is no cure. The Myasthenia Gravis Foundation of America is the only national organization dedicated to research, awareness and advocacy efforts to help MG patients.
I was diagnosed with MG in 2006, and I made the choice to persevere, keep a positive attitude and advocate for myself and others with MG. In 2014, I organized the first Southern Illinois MG Walk, and as an advocate, I raise awareness wherever my journey leads me.
The 2019 Southern MG Walk is Saturday, Sept. 21, at Fort Massac State Park in Metropolis. Registration is from 9 to 10 a.m. Visit www.mgwalk.org for more information.